By the urgency of my psychiatric nurse, I called the HHV6 foundation yesterday. I talked to someone there who based off my symptoms thinks that I may have a rare disorder called chromosomally integrated HHV6. I looked through my labs and have not been tested for this yet. Now I am just hoping that one of my doctors can run the right tests for this! If I have it I might end up being a lab rat (they are looking to study people with this condition and some of my other conditions).
She also sent me more tests that need to be run on me and also a list of supplements to take to help booster the immune system. I’m going to share these results with my doctors. Hopefully I can start to feel better soon.