Chronic Active Epstein Barr Viral Syndrome: A Rare, Misunderstood, Progressive, and Sometimes Fatal Disease

FACT CHECK ME ON THIS TO ANYONE WHO IS LISTENING. So, anyways, I have this syndrome called Chronic Active Epstein Barr Virus Syndrome (otherwise known as mono, the kissing disease, which is now believed to be spread in more ways than kissing) that is progressive and if not arrested, can be fatal in ways that are usually experienced by immunocompromised patients such as HIV patients. I had mono as a child at the age of 14, and was 33 when the symptoms really hit. And the really funny thing is, that I was diagnosed with alcoholism, but I never had a craving to drink (actually really wanted to drink) until I started to really develop severe symptoms of it in 2015, at 9 1/2 years sober. I really thought that I knew what cravings were like before that, but I just hadn’t experienced what that was like. It was terrifying and just out of nowhere. And the reason why I wanted to drink is because I was in chronic pain, was delirious and couldn’t think straight, anxious about why I suddenly felt like total crap, and it drove me crazy not to know what was bothering me because no one could figure it out, not even doctors. I was told that I had Chronic Fatigue and Fibromyalgia in 2009, which are two mysterious diseases. And, after the symptoms hit in 2015, I kept going to AA for two more years. The longer that I stayed in AA, the more my symptoms worsened, so I left. Then, I finally got the diagnosis of what those symptoms were, which are just the symptoms of mono that do not go away for I think it’s 6 months or more at a time (there’s some conflicting evidence coming out about it so you’d have to ask a doctor about the exact timeline right now) and then compromises your immune system over time. I was thinking of drinking, though, all the time when I was at AA, and then when I left, I got better because I could actually spend time taking care of myself. Hopefully, I can arrest this virus in time with medical assistance. I struggle with the whole God concept and really was agnostic for most of this time. I still basically am, but I’m still figuring it out. Oh, and on top of that diagnosis, I also was diagnosed with Hashimoto’s Thyroiditis in 2003 I believe.

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